Tag Archive | New York

Le Roy Tourette Syndrome “mystery”

I’ve obviously neglected this blog and the job of chronicling the steps toward helping Jennifer with her health problems related to her Gardasil injury.  Before I post an update on Jennifer’s health status and what we’ve been doing, I need to share my thoughts on a news story from Le Roy, New York, that’s getting national attention.  In my opinion, when 12 girls develop Tourette’s like symptoms, and families aren’t given legitimate answers to what may have caused it, the media should do their job of digging for the truth.  The news coverage, and information shared by the experts, have got my blood boiling.  I’m so tired of watching anchors of news programs sit across from experts and spew politically correct lip service questions.  Ask the questions we all want answered…what is the common element that these girls share that may have caused this?  The families claim they haven’t been told what could have gone wrong with their daughters.  The experts claim the girls have psychological issues, Conversion Disorder,and this is a common, but not well-known, phenomenon.  The poor girls are trying to explain that they weren’t stressed before this condition, did not know each other, and just want to know what caused their condition.  This all sounds too familiar.  The Gardasil injured girls, and their families have been searching for answers, looking for validation, and getting the same run around from the “experts”.  I know that I’m not alone in my feelings of frustration with how the Le Roy situation is being handled, and like many others, I feel a need to support these families through this difficult time.  The Families Affected by Gardasil Facebook group has been a life jacket for me as I’ve tried to keep my head above water trying to find answers and grieve over the illness my daughter has been inflicted with.  My hope for the Le Roy families are that they too will find support and continue to advocate for their daughters and teens around the world.